Links


Lysosomal Diseases

http://www.goldinfo.org/

http://www.lsdresearch.org

http://www.mpssociety.org/
http://www.mpssociety.co.uk/
http://www.mpssociety.org.au/
http://www.mps-austria.at/
http://www.mpssociety.ca/
http://www.mps-ev.de/
http://www.hk-mps.com/
http://www.mucopolisaccaridosi.it/
http://www.ann.hi-ho.ne.jp/ginchann/menu_mps.html
http://www.svsu.edu/%7Ewhu/mps_htm/index.htm
maladies-lysosomales@yahoogroupes.fr
http://www.mpsesp.org/


European organisations

http://www.orpha.net
http://www.eurordis.org/
http://www.emea.eu.int


National Organisations for Rare Diseases

EUROPE

FRANCE
Alliance Maladies Rares
http://www.alliance-maladies-rares.org/

GERMANY
ACHSE Allianz Chronischer seltener Erkrankungen e.V.
http://www.achse-online.de

ITALY
Federazione Italiana Malattie Rare (UNIAMO FIMR)
http://www.uniamo.org/

NETHERLANDS
Working Group on Rare Disorders (VSOP)
http://www.vsop.nl

SPAIN
Federación Española de Enfermedades Raras (FEDER)
http://www.enfermedades-raras.org

SWEDEN
The Swedish Association of Rare Disorders (Sällsynta diagnoser)
http://www.sallsyntadiagnoser.nu

USA

National Organization for Rare Disorders
http://www.rarediseases.org/


Pharmaceutical companies & Biotechs

http://www.shire.com/shire/
http://www.ptcbio.com

http://www.genzyme.com/
http://www.biomarinpharm.com/
http://www.amicustherapeutics.com


Others

http://www.pubmed.org
http://afssaps.sante.fr/
http://www.fda.gov/
http://www.institutmaladiesrares.net/
http://www.recherche.gouv.fr/
http://clinicaltrials.gov/
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